- Blind Children’s Center
- Blind Children’s Learning Center
- California Deaf-Blind Services
- California School for the Blind
- Foundation for Blind Children
- Hadley School for the Blind
- Junior Blind of America
- Penrickton Center for Blind Children
Dr Lilli Nielsen’s Active Learning equipment is available from the Center; also hosts Active Learning seminars.
- Perkins School for the Blind
Other Agencies and Websites of Interest
- AbleCloset – lending library providing children with special needs with a resource for borrowing pediatric rehabilitative equipment at no cost to their family. Developed by BBF alum parent Kelly Steitz and family.
- Accessible Image Sample Book – free online resource by the DIAGRAM Center. (BBF Alum Parent Helen Popper is on the Advisory Board of DIAGRAM)
- American Foundation for the Blind
- American Printing House for the Blind, Inc.
- Axistive-Assistive Technology News Portal
- Blind Links Created by Ron Marriage
- California Association for Parents of the Visually Impaired (CAPVI)
- California Department of Developmental Services – Appeals & Complaints– description of appeals process in the Lanterman Act
- Center for Accessible Technology
- Child Development Media, Inc.
- Culturally and Linguistically Appropriate Services (CLAS)
- FamilyConnect-for parents of children with visual impairments
- FocusFamilies website for families who have children with ONH/SOD
- Good Night Captain Mama – book written by BBF parent Graciela Tiscareño-Sato
- Guide Dogs for the Blind
- Hydrocephalus Association
- LilliWorks-Active Learning Equipment and Information
- Milagro’s Journey
The story of Milagro and home of the DVD “Letting Your Child’s Wild Side Out: Raising the Wild and Confidant VI Baby-Preschooler” A portion of DVD sales will benefit BBF as well as CAPVI.
- National Association for Parents of Children with Visual Impairments (NAPVI)
- National Organization for Albinism and Hypopigmentation (NOAH)
- National Tele-Support Network for Parents of Children with Visual Impairments
- Then I Met You – a publication by VIS Staff member Mariah Roberts
- WonderBaby.org – a project funded by Perkins School for the Blind, is dedicated to helping parents of young children with visual impairments as well as children with multiple disabilities. Here you’ll find a database of articles written by parents who want to share with others what they’ve learned about playing with and teaching a blind child, as well as links to meaningful resources and ways to connect with other families.
- Rekha’s List – community guide to free or sliding scale medical services
- Zero to Three
Babies Count National Registry of Early Childhood Vision Impairment
Babies Count is a national registry project which collects data on infants and toddlers with visual impairment, birth to three years of age.
Families are able to choose what information they share with Babies Count National Registry Project. The child’s name is never submitted on the form. The form is coded by BBF to protect the privacy of the child and the family. The data is submitted to the American Printing House for the Blind. The data is then analyzed on a state and national level. No previous national registry has ever existed.
Goals of the Babies Count National Registry
The goals of the Registry Project are:
- To clarify and refine early identification and referral procedures
- To provide consistent and realistic data of the number and location of children with visual impairment-related needs
- To analyze types and trends in visual diagnoses
- To define related preventative and remedial medical issues
- To outline teaching and learning needs of service providers
- To identify personnel numbers and needs for appropriate training initiatives
- To promote additional advocacy and research efforts
- To validate funding requests for additional related program
- To determine equipment, materials, and supplies most appropriate to serve children with visual impairments
For more information regarding BBF’s participation in the Babies Count National Registry, please contact Gail Calvello, Program Co-Director and Outreach Coordinator: (707) 762-8844
For more information on the Babies Count Project in general, visit the website at American Printinghouse for the Blind: Babies Count Registry-APH
Natural Environments Position Paper
Click Natural Environments Position Monograph to read a monograph regarding our position on Natural Environments
Essential Elements in Early Intervention
Congratulations to BBF PAC Member Deborah Chen, Ph.D. on her recent AFB Press publication, the second edition of Essential Elements in Early Intervention Visual Impairment and Multiple Disabilities!
Essential Elements in Early Intervention Visual Impairment and Multiple Disabilities, Second Edition
Essential Elements in Early Intervention is a complete sourcebook and guide for early interventionists, teachers of students with visual impairments, and other professionals who work with young children with visual impairments, dual sensory impairments, and multiple disabilities. It includes comprehensive information on vision and hearing examinations, functional vision and hearing assessments, and effective methods of providing early intervention services. The new edition includes expanded, updated information on federal special education legislation, best practices in early intervention, evidence-based outcomes, and the role of the early interventionist, as well as strategies for working with families and educational teams successfully.